Last updated on August 29th, 2022 at 02:07 pm

For charities and patient groups

Gene People Partnership Network

The UK Genetic Conditions Partnership Network is an exciting new collaboration between organisations working to improve the lives of those affected by genetic conditions. Membership is open to genetic condition charities and patient groups, and to special schools, hospitals, hospices and service organisations who support and care for those affected by a genetic condition.

Genetic Disorders UK Leadership Symposium

Gene People Leadership Symposium

The Gene People Leadership Symposium is an important opportunity for leaders in the genetic condition community to discuss, learn and network on a wide range of topics related to genetic disorders. The Gene People Leadership Symposium welcomes charity and community groups, medical professionals, industry and everyone else focused on genetic conditions.

The Gene People Leadership Symposium 2022 will take place virtually on 4 and November 2022, 13:30-16:30.

This year’s theme is ‘New: Genetic conditions in a (hopefully) post-pandemic world’.

Genetic Disorders Charities and Patient Groups


We are in the process of establishing a list of all the genetic condition charities and patient groups in the UK. If you would like your organisation to be added to this list, please contact us.

Champions of Hope

Champions of Hope

Our Champions of Hope awards recognise individuals who have made a significant contribution to the UK genetic conditions community.