About Gene People UK

Last updated on December 10th, 2021 at 07:20 pm

Gene People, previously known as Genetic Disorders UK, is a registered charity with a vision to improve the lives of individuals and families affected by genetic conditions.

While individual genetic conditions are rare, it is thought that there are currently more than 6,000 diagnosed conditions and new conditions are being identified every day. It is estimated that 1 in 25 children is affected by a genetic condition. This means that in the UK, 30,000 babies and children are newly diagnosed each year and more than 2.4 million children and adults are living with a genetic condition.

Our mission is to be the leading source of information and support for both those affected by a genetic condition, and the charities and patient groups that support them, by bringing together everyone’s combined experience in a place it can be shared.

We are an anti-racist organisation and have published our statement about our position.

Much of our website content is written by individuals who are either affected by a genetic condition themselves or are in a family affected by a genetic condition. If you would like to contribute to our work either by writing about your experience or sharing information, please contact us.