National Policy

Last updated on July 8th, 2022 at 05:04 pm

Gene People responds to consultations about national policy that impact the genetic conditions community, reflecting the experience of those who use the Helpline and our Partnership Network members.

We aim to be transparent and publish our responses.

Gene People’s Response to the NICE Review –  Download as a PDF or  Download as a Word document

Response to the MHRA medical devices regulation consultation –  Download as a PDF or  Download as a Word document

Response to the UK Rare Disease Framework England Action Plan consultation –  Download as a PDF or  Download as a Word document

Response to MHRA consultation on clinical trials –  Download as a PDF or  Download as a Word document 

Response to Mental Health and Wellbeing Plan consultation –  Download as a Word document