John has been director of the Specialised Healthcare Alliance since 2004. The alliance is a coalition of 109 patient-related organisations supported by 15 corporate members, focused on the provision of specialised services to people with rare and complex medical conditions. John came to the role after a career in UK/EU government affairs and media relations, where he worked on behalf of the food, financial services, healthcare and shipping industries. He is also senior partner at JMC Partners LLP, a specialist healthcare policy consultancy.
John reviews recent and prospective developments in specialised commissioning as they affect both small (under 500 affected individuals) and larger groups of genetic disorder patients.