As chief executive of the Ataxia-Telangiectasia Society, William leads the charity’s work supporting those living with ataxia-telangiectasia, as well as its research into this complex, disabling and life-shortening condition. His 17 years of work in paid and voluntary capacities for disability charities includes 11 years at the MS Society, where he delivered major improvements to quality and consistency in volunteering and local service delivery.
Alongside experience in providing such services, William has experience in accessing them, as partner to a person with a long-term disabling condition. He is an ardent believer in the value that can be achieved when well-run charities work alongside health and social care professionals.
William talks about how the A-T Society plans to use their recently published clinical guidance to improve health care for children with A-T in the UK and abroad.